How 20 Minutes with my Oncologist Validated my Decision to get a Double Mastectomy for a Stage 0 Cancer

by | Nov 28, 2019 | Breast Cancer, Health & Wellness, People Stories

As we followed the medical assistant back to the oncologist’s office, I couldn’t help but notice the curved row of recliners right in the main central corridor of the clinic.

They looked out a huge wall of glass to the gorgeous rain-soaked North Scottsdale desert. Were it not for an IV pole perched next to each lounger, a bag of clear yellowish liquid hung and ready to be infused, this area could have been a nicely-appointed nail salon.

But I knew what it was. My husband, Michael knew what it was. This was where cancer patients received infusions of chemotherapy that would kill their cancer cells, along with many of their healthy cells, causing gastrointestinal distress, hair loss, fatigue, and all the other symptoms synonymous with cancer. We passed wordlessly, and I felt both grateful and guilty that I wouldn’t have to sit in one of these chairs as part of my treatment.

Dr. Brendan Curley entered the room cheerfully, his warm smile reaching right up to his blue eyes.

He shook our hands firmly, introducing himself, then said to my husband, “And you are…?” We laughed as he explained that he didn’t want to assume he was my husband rather than my father, son, boyfriend, or something else. We shared stories of mistaken identity and awkwardness upon assuming the wrong relationship. I once assumed my patient’s girlfriend was his mother and he once assumed a patient’s daughter was his granddaughter. So, we both had learned never to assume.

And then, before getting into any details, as if he wanted to relieve any fears up front and make me feel at ease right away, he said with a smile, “Want to know what my treatment plan is for you? None. There is none. I don’t ever need to see you again.”

Nevertheless, he took a few minutes to get to know me and really listened to my story.

When he heard I was in nursing school, and also working for HonorHealth, he suggested maybe I could come work with him after I graduate. I think I just might do that! He was professional and friendly, warm and personable. Our consult felt like a chat with an old friend. I have met very few doctors who made me feel so valued, important and cared for during a routine consultation. 

After he listened, he spoke. And this visit – these 20 minutes with the oncologist who I never have to see again – confirmed and validated my decision to get a bilateral mastectomy for a Stage 0 cancer.

I knew for sure I had made the right decision, even though it was (still is) painful and a lot less fun in reality than I had imagined…

He carefully outlined the options I could have taken and what the treatment protocol would have been with each of those options.

Since the kind of cancer I had, DCIS (Ductal Carcinoma in Situ) is Stage 0 noninvasive cancer, chemotherapy is almost never part of the treatment.

Chemo is only ever given if the cancer becomes invasive or is found in the lymph nodes.

But even though my cancer was non-invasive – contained “in situ” within the milk ducts – if I had elected to have just a lumpectomy, he would have treated me with radiation followed by a hormone blocker pill to eliminate recurrent DCIS or a new breast cancer in the same breast or the contralateral breast.

Had I chosen only a single mastectomy…

I would have eliminated the need for radiation and reduced my risk by 50% since I would have removed 50% of the breast tissue, but I would still have needed to take an estrogen blocking pill, Tamoxifen for at least five years to lower risk in the contralateral breast.

But in choosing the bilateral mastectomy…

which removed all of the breast tissue from both sides, I had essentially eliminated my risk. I now have less than a 1% chance of ever in my life getting breast cancer.

And since all my genetic testing came back negative for cancer markers, I don’t have an increased risk for any other type of cancer either.

That doesn’t mean I have a guarantee to never get cancer. Even healthy people get cancer. There are carcinogens in our environment, in our food, and who knows where else. But I can go back to living as healthy as I can and not have to worry.

The oncologist’s office was a beautiful, peaceful and surprisingly positive place. If I had to go there regularly for treatments, it would be a pleasant environment in which to face the pain of cancer treatment. Still, I am grateful that I don’t have to go there again!

I stumbled upon the video below as I was writing this story

I thought it perfectly captured Dr. Curley’s sweetness and authenticity. Growing up in a small town in Pennsylvania, his mom was “everyone’s doctor” and his dad was a cancer doctor in a larger town a bit further away. Dr. Curley’s oncology practice brings together these two flavors of patient care into a warm and friendly experience, even as he helps patients navigate the scariest illness.

And in his spare time, he volunteers at the hospital with his therapy dog, Princess Danger, an adorable English bulldog. . He doesn’t even mention to the patients he visits with Princess Danger that he’s a cancer doctor. When he visits with them, he’s just a sweet, smiley guy who cares.

“Life is about finding people who care. It’s about finding people who are going to take the time, finding people who essentially are going to treat you like family,” he says. 

“Life is not about extending days. Life is about adding moments.” 

And I won’t soon forget the few moments I spent with Dr. Brendan Curley. If you have to have a cancer doctor, Dr. Brendan Curley is a great one.

 

4 Comments

  1. Lindsay Kelly

    This was beautifully written. Thank you for being so open and honest with your readers. Looking forward to reading more. All the best to you and yours!

    Reply
    • Danielle

      Thanks, Lindsay!

      Reply
  2. Jenny Martin

    Hi Danielle,

    I was so happy to read this and want to share to Dr. Curly’s office pages. Can I send you the media consent for AZCCC and Honor Health? My email is jenny.martin@arizonaccc.com

    Reply

Submit a Comment

Your email address will not be published. Required fields are marked *

Pin It on Pinterest

Skip to content